How I Combat Loss of Appetite and NauseaGetting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well... By Katelyn Harlow3 min readBookmark for later
Too Much Immune System for Me: Immunosuppressants and CFSometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used... By Janeil Whitworth3 min readBookmark for later
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched... By Emma Boniface3 min readBookmark for later
How I Combat Loss of Appetite and NauseaGetting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well... By Katelyn Harlow3 min readBookmark for later
Too Much Immune System for Me: Immunosuppressants and CFSometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used... By Janeil Whitworth3 min readBookmark for later
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched... By Emma Boniface3 min readBookmark for later
How I Combat Loss of Appetite and NauseaGetting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well... By Katelyn Harlow3 min readBookmark for later
Too Much Immune System for Me: Immunosuppressants and CFSometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used... By Janeil Whitworth3 min readBookmark for later
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched... By Emma Boniface3 min readBookmark for later
A Letter to My Morning LungsDear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every morning. I am sluggish and tired too. It’s... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
In Sickness and in Health: Telling my Partner I have CFI have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being a rare disease, there are still a lot... By Mikayla Bianchin3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Child's Trikafta FlareThe first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year and a half in. First, he got strep...Bookmark for laterReactions 0 reactions Comments1 comments
Will you take our In America survey and help others understand the true impact of cystic fibrosis?To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By taking this anonymous survey, you can help...Bookmark for laterReactions 0 reactions Comments1 replies