FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions 0 reactions Comments3 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions 0 reactions Comments25 replies
Active todayhiiSo I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...Reactions 0 reactions Comments1 repliesTips & AdviceCoping
Active 7 days agoI wonder how many people are carriers & only find out after genetic testing during pregnancy?I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...Reactions 0 reactions Comments0 repliesCarriers
Best types of digestive enzymesI’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried creon, zenpep and now vital nutrients pancreatic enzymes)...Reactions 0 reactions Comments0 repliesGI Symptoms
My breathing and being in painI have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think I'm going in circle and not seem to...Reactions 0 reactions Comments1 replies
Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamationMy elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...Reactions 0 reactions Comments1 repliesGI SymptomsCarriers
Hair lossI'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...Reactions 0 reactions Comments0 repliesDepressionTrikafta
How Old Were You When You Were Diagnosed?I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So, when were you (or your loved one) diagnosed...Reactions 0 reactions Comments0 repliesDiagnosis
Tilting therapy bed for physio for CFI have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...Reactions 0 reactions Comments0 repliesDaily Treatment
Hello everyone, I'm a Respiratory Therapist and wanted to check in.Good afternoon, I'm a long-time therapist in middle TN, and I've had the privilege of taking care of many patients with cystic fibrosis over the years. My first experiences with...Reactions 0 reactions Comments0 repliesHealthcare Team
General friendly question.How is everyone doing?...Reactions 0 reactions Comments1 repliesCopingFriends & FamilyWork & Employment